Wednesday, June 20, 2018

Where Was My “Ruth”? Mental Illness Isn't 'Other People'


(Originally published in "Times of Israel". Republished here with permission.)

Had you asked me five years ago, I would’ve said that I didn’t personally know anyone who struggled with mental illness. Those days, my only awareness of this scourge occurred when I encountered those unfortunate souls who lived in the subways. Mental illness seemed an issue that had absolutely nothing to do with me.

On Friday, July 20, 2012, I learned, in fact, that mental illness and I had a very close relationship when I found my son almost dead, having attempted to take his own life. At that time I believed this happened without any warning.

But, in fact, there had been warnings. There had been some acts of poor judgment that had started materializing in the past year, and certain times when Jonathan seemed to behave out of character completely, seemed so deeply sad for no apparent reason. It seemed bizarre, but, other than during these aberrant stints, he was so “normal”, respectful, helpful, introspective and analytical, affectionate, and I assumed that these ups and downs were the expected behavior pattern of a 20 year old adolescent boy. It wasn’t fun, but it seemed standard. This was the form and depth of our denial.

There was no friend in whom to confide, even in my moments of worry. When I disclosed some behaviors to certain friends who had adolescent sons, they didn’t express alarm or suggest anything might be awry. It was easy to stay blind.

Once the truth pounded our heads with a club and we needed to find a way to help him, we still had no idea where to turn for information or support. We were utterly alone and isolated by stigma and ignorance. As far as we were aware, our terrible problem was unique in our community. Who would have the knowledge to guide us even if we were willing to reach out?  

Over these past four years, I have been contacted by many whose lives have been disrupted by mental illness. Those who suffer themselves contact me to understand their parents better. They speak with me about their own behavior and seek words of comfort that they wish they could hear from their parents. Parents contact me to ask for referrals for treatment. Or, they present their child’s behavior and ask if it is possible that these are signs of mental illness. They almost always deny when I tell them that they might consider that their child has an illness; I recognize the language of denial. Sometimes, they contact me to talk about how they feel. Siblings contact me to ask for ideas on how to help their parents deal with their brother’s/sister’s illness, which is tragically destroying the family. They ask how they can help their parents “face” the illness and the steps they can take to survive emotionally. At the end of every contact, I am thanked profusely, and often tearfully. 

With this writing, though there may still be ignorance, I encourage people to reach out to their friends if they suspect their child is ill, or if they are already aware of their child’s illness. I appreciate that this is difficult to do in a society that stigmatizes mental illness.

To those who need help I would say: The stigma is slowly decreasing and will eventually go away; don’t wait until it’s gone. Don’t wait, because there is too much at stake and you might not have the luxury of time, as I didn’t. Don’t stop with one friend; that “pearl of wisdom” that you need may reside with the next friend, or the next.  Don’t be afraid of being judged. Even if your friend is not able to offer advice, you may get the support so essential to help you soldier on.

I had no “Ruth” to whom to turn because of our own, and others’, fear of stigma. Now, with deeper understanding, I am gratified to be able to help others; it won’t bring Jonathan back to us, but it is the only thing that brings some measure of healing. People call me courageous as a result. That adjective isn’t accurate; I simply envision myself in a “post-judgmental” and “de-stigmatized” world, and act accordingly.

To those who need the support or can offer it, I promise that in taking this approach you won’t be sorry. You may discover that others share these very same issues; you may decide to check your assumptions. Your burden may be lessened. For certain, you will be helped, and you will help someone else, and with that you will have made an enormous difference.